Easter Sunday

We are waiting for Easter breakfast to arrive. 

Yesterday we got a wheelchair and I brought Greg outside to greet Donna and Jill on the sidewalk when they got to the Brigham. His first breath of fresh air in almost six weeks. Jill was surprised but he wasn't all that impressed. 

Today when D and I showed up and I suggested we take another wheel around the hospital. In typical Greg fashion he busted my chops. He apparently doesn't like the sweater I'm wearing today and really doesn't want to be seen with me on public.  

Dr Du was in yesterday and Greg actually asked her about rehab, and how long that would take. She really does not know, did say that Greg is ahead of the curve, which makes predicting the rehab timeline difficult. Not a bad outlook .... Could be a lot worse.

We hope the journey to Spaulding begins tomorrow. 

I hope everyone has a nice Easter !!

Best 

Mike

Easier weekend March 30th

Good morning.... What a beautiful day

I continue to write my blog so that means we are still here at the Brigham and we will be celebrating our Easter on the 10th floor.

We have had a busy morning. Started out with breakfast and then a shower and shave,  Want to look handsome for Jill and Donna's arrival later this morning.  

I find Greg is remembering things better than only a few short days ago, although this morning he argued with me( nothing unusual about that).  He said Donna was going to be really mad at him because he was in  a plane crash in Brazil last night, which is where the scars on his head came from.
This guy has been all over the world the past week or so. He told me that yesterday he was in Portugal with his buddy Ben and an old friend from prep school, Mike Weed.  He has actually been in Portugal with Ben.

As Donna and I were driving home last night, recognizing the sutle improvements that Greg is making, we not only admitted to just what a fearful situation we had been in, but also how fortunate we are now. We have both heard stories from other people.  People who know other people....you know how that goes.  As we celebrate Easter, we realize just what a miracle it is that Greg is so far along, and that the long term outlook is so promising

Although his progress over the past couple of weeks is truly miraculous, we cannot set ourselves up for a major disappointment and fail to expect and accept the anticipated ups and downs ahead on his road to health.

Glad to get my time with Greg this  morning, and can't wait to pick up Jake and Gavin to go to Maggie's "rainbow unicorn" birthday party later today.

Have a great day and wonderful Easter weekend.

Mike

Another Friday at the Brigham March 29th

Surprise...... Still here, and so my breakfast routine continues.

We had thought a bed was opening up at Spaulding, but unfortunately it did not and Greg here still here at the Brigham. 

Last night Jehan, Natalie, and Sean paid a visit.  For a good part of the evening Greg was really, really good.  Dr. Du came in and was very impressed with all of his answers to her typical questions, " your name, where are you, what year is it".  I think he was really showing off!!  He spent part of yesterday actually working on word find puzzles,  and Jill reports he was actually pretty good at it.....such progress!  But then his confusion comes back. 

He is really beginning to recognize the fact that he hasn't seen the boys, Jake and Gavin, for some time.  He talked about missing them last night.  Things are slowly coming back and this gives us reason for continued optimism, but it is also hard to see him feel this sadness.

Lets hope for the move today.  My fear is that if not today, the holiday weekend will impact any potential change of venue and make the transition a bit less effective. I'm sure the activity at Spaulding would be different over Easter weekend.  Anybody up for an Easter egg hunt at the Spaulding ?  Just kidding!

I am really looking forward to Maggie's birthday party tomorrow.  Can't believe she is going to be three.   It will be so much fun to have all the grandchildren together.  It has been so long given the circumstances and I miss seeing them.  

I will let you know how the week ends.

Have a Happy Easter!!

Mike

The Next Chapter - March 28th

Good morning everyone:

Well today is a big day on Greg's road to health. We should find out later this morning, but are expecting the much anticipated move to Spaulding  Rehabilitation.  I have told Greg this morning that this was going to happen and he doesn't quite understand what this means. Got a

"Whatever" when I explained it to him. Getting out of the Brigham after spending essentially 5 1/2 weeks in bed will certainly improve his spirit. 

Last night during and after dinner Greg was in his usual " pleasantly confused state".  Donna and I are usually with him during the late afternoon and early evening, and we have both recognized that his confusion seems to be somewhat worse at this time of day,  I suggested that perhaps he was experiencing a sundowning effect.  We spoke with one of the nurses who indicated that this is common following brain trauma.  I have also read this morning that this "sundowning 

syndrome"  is in fact common, temporary and often occurs in patients following a brain injury. 

We are going to spend our last breakfast together this morning,as Spaulding doesn't allow visitors until the afternoon during the week.  I guess that means I can no longer use this as an excuse to go to work late, and plan to resume my normal  morning schedule if this move in fact happens today.  I will look forward to spending our mornings together again soon, but together at the office.  

As we move on to the next chapter, I will be modifying my morning updates.  It is likely that they will not be an everyday account, but a periodic update on Greg's progress in rehab.  For all of our wonderful friends and family who have been following the blog, supporting Greg and the rest of us during this ordeal,  and sending prayers and positive energy, we send to you our heartfelt thanks!!!!!!!  If nothing else, I hope that when Greg is well enough to read all of the blogposts, he will comprehend the magnitude of what he went through, and the outpouring of love for him. 

If you have any questions moving forward feel free to email me at mcoutu@sudburydesign.com. 

With much love and appreciation 

Pops

Just waiting....March 27th

Wednesday March 27th

Got here this morning to find Greg sleeping soundly. Looking pretty good with his new clean shave.

Sometimes it takes a while for change to happen. We remain at the Brigham in anticipation of his move to Spaulding. I must admit it is a bit frustrating waiting for a bed, knowing that getting to rehab will be really beneficial. Donna and I were here last night and felt as though Greg was actually a bit more confused.  Jill was here when the Drs did their evaluation yesterday however, and reported Greg did quite well.  I expect that this is the predictable ups and downs.

Greg's friend from UConn, Jeff Anderson, stopped for a quick visit last night and Greg entertained him with comic relief.

I want to give a special shout out to my Aunt Theresa, one of the sweetest woman in the world, and to my cousins and their families. She is just up the hill from us at the Baptist, in the ICU, and not doing well.

Let's hope we can make our move today!

Mike

The last day at the Brigham??

Tuesday March 26th:

Well... I have gotten over myself. Although Greg called me last night to let me know he had a hockey game this morning and forgot his skates.  This isn't much different than a call I would have gotten from him back in the the junior high days. I am not sure how pleased I am that he remembers how to use his IPhone, could be getting calls at all hours.  Oh well.....I'll take them gladly

It is pretty clear how we have all felt about the ICU staff.  This morning, two of the nurses that cared for Greg, Meghan and Danielle, came to check on their friend.  This, after their long twelve hour shift.  What commitment!!!

There is a real possibility that we will be visiting Greg at Spaulding tonight. I am not going to be disappointed if it doesn't happen, but very pleased if it does. He is ready to make the move.  Ready to meet the next challenge and get closer to going home. Something he has actually mentioned over the last couple of days.

I know many people have asked about visiting Greg. Once the move to Spaulding takes place, and we have an opportunity to assess his daily routine, we will get the word out.  Your love and support will certainly be instrumental to his ongoing recovery, needed and appreciated.

Have a great day!!

Mike

A new week. March 25th

March 25th
A new week ahead

Well last night was a bit scary.  Not for Greg, but for me.  Greg has finally moved to the regular floor and out of ICU.  For reasons that are obvious, this move is a tremendous step forward on Greg's road to health.  It really hit home however, as we transitioned from what had become a safe, protecting, and comforting place, that we were moving onto the next phase of this journey.

It is unsettling!  We have gone through the day to day critical periods, where you react instinctively, deal with the moment, and don't have time to dwell on he future.  Now, the future lies in front of us and the unknown is a bit daunting.  You know this family by now and realize the strength we bring to one another.  We will need this more than ever as Greg moves toward rehab.

Although the doctors give us great positivity, and Greg has overwhelmed them to date, it is very hard to avoid the elephant in the room.  Greg has a long road in front of him.  I try not to read too much about the long term residual affects of subarachnoid aneurysms. Doing this only casts shadows over my typical state of optimism.  Rest assured this is a moment, and not the confident commitment we will bring forward for Greg. On the other hand, all of us, Greg's entire family and friends, are entitled to have these moments.  We cannot pretend all the time.  To mask our fears and concerns and not deal with them directly, would in some weird way, weaken our resolve to give Greg the ongoing support he will definitely need from all of us.

Greg is pretty comfortable here this morning waiting for breakfast.  He will be surprised that he won't be getting his usual mammoth tray.  They've placed him on a fat restrictive diet.  So much for bacon and home fries!!

Although he didn't remember, yesterday he took a shower!  I can only imagine how good that must have felt.

We are hoping that Greg will move to Spaulding as soon as possible. It is my understanding that we are just waiting for a room to open up that allows a sitter, which I guess Greg will need for a while. Let's get this party started!

Have a good Monday and thankfully the storm is going out to sea!

Mike

Sunday the 24th of March

Sunday morning march 24th

Got here a little later than my usual time, at about 6:45 this morning. My friend was wide awake and greeted me with " you are late". I swear the kid doesn't cut he old man any slack, even on a weekend.  Once we chatted a minute, off to sleep he went.  Good thing I didn't stay in bed.

Greg is doing really well but is still in the ICU this morning. This is due to the fact that no beds were available upstairs and nothing to do with his progress.

Greg was asking silly questions about Jehan, and apologizing for parking his car out in the hall this morning.  Sharp as a tack, but with his usual sense of humor.  We have now had breakfast, gone for a walk, and he is now snoring.

Have a great day

Mike

A big day ahead

Good Saturday morning:

Well things are really on track for Greg this weekend.  His progress, as evident on the video on Thursday, is beyond all of our expectations.

When a room is available he will be moving to the 10th floor, the regular neuro floor, and out of the ICU. His stay there will most likely be short, and he will be heading to Spaulding/ Boston to begin the rehab phase of this adventure.  This will change things for his family as we will have to abide by new visitation rules that allow time for his work in therapy. I may not be able to be with him for breakfast anymore and may actually have to go to work in the morning.  I was kind of enjoying my banker's hours.

Leaving the ICU will not be a big adjustment for Greg but it will be HUGE for the rest of us. He has no understanding of the last month, the staff here, or the impact they have had on our life.  Leaving this unit will be both joyful and sad as we feel we are leaving friends behind.  I know we will see them again.

Medically Greg is really doing well.  He continues his pleasant state of confusion.  Moving to Spaulding will get him started on his physical and cognitive therapy.  Although it will be different than the past five weeks, we will embrace a new challenge and continue our support for Greg and his family.  I know that everyone following and rooting for Greg will do the same.

Have a great weekend

Mike

End of another week

March 22nd

Greg got a good night sleep last night.  We are sitting watching the news and will soon order breakfast.  Greg continued his amazing progress yesterday, taking a couple of walks around the unit.  Beginning to look more like himself, laying in bed with his gym shorts and hoodie on.

Today's plan is a little up in the air.  Depending on Dr. Du's directive he could move to a regular floor as early as today.  That would mean removing his central line, coming off the levofed( IV used to keep BP high ), and eliminating IV fluids.  This is aggressive and the nursing staff is lobbying to take things off more conservatively. His ultrasound(TCD) yesterday was actually slightly worse than he day before, so the less aggressive approach might keep him here another day or so before going to he regular floor.  All in all we can't believe his rapid progress.

I am going to make an admission this morning.  We have had a little free throw competition going on in the room over the past week or so.  I have to admit that Jill is by far winning the tourney.  But, I think she has to admit that she spends most of the day practicing while the rest of us are at work.  Nonetheless, her 7 of 10 is a record that may holdup.  Going forward we all have to agree that Greg is not a credible witness.

I have not seen John here since last weekend and although I see the stack of ProV1's growing we also need to do some record keeping on that front.  Today is the 28th day since Greg's first aneurysm surgery. Thus:   28 x 3 = 84 golf balls.  I only see 48 balls on the shelf, which by my tally leaves him quite short.  

You really have to keep an eye on this Landry clan!!

Greg's sister Natalie has been working very hard on a special project for Greg.  I hope she brings it to him today as the suspense is killing us.  We all know how creative she is.  Working, four kids, and trips from RI to the Brigham leaves her with so much free time.

Have a great Friday.

Mike

Video is now on YouTube (as well as Facebook)!!!

Hi All,

The video is having technical difficulties uploading to the blog .... BUT here it is on You Tube :) ENJOY!!



XOXO
~ Jill

Happy Spring. March 21st

Good morning everyone:

If you read yesterday's update, you may remember that I said Greg likes to surprise us!!!  

Well all I will say is that yesterday afternoon I left my office with a huge smile, anxious to get to the Brigham.  

I am not going to bore you as usual this morning......just watch the attached video.   You will share my joy.

Have a great day,,
Mike

Looking pretty handsome today. March 20th

A huge milestone yesterday at the Brigham.  No, I didn't reach the $5000 mark at Au Bon Pain, Greg had his staples removed, the EEG leads taken off, and the DRAIN removed.  Of course in typical Greg fashion, he ripped the last remaining bandages from his head five times. Last night we had some wonderful interaction, none of which he will recall today.  But, we really saw some of his personality.

The nurse today reports that Greg had another couple of " episodes " through the night, similar to what they thought was seizure activity.  They took him down for another CT during the night to see what was going on.  The moderate spasm in he vessel that continues to concern them is still present.  They have changed the anti seizure medication to see if hat has any impact.  Headaches during the night bought him some additional meds so he is sleeping here this morning.  Doesn't look like we will get breakfast together today.

It is likely, based on my conversation with the nurse this morning, that he will be in the unit for the foreseeable future.  He has stuff on his schedule here through he 26th.  You never know with this kid, he likes to surprise us.

Mike

Four weeks in .....

One month ago today. Hard to believe what Greg has endured in these four weeks. It is also to comprehend or understand the impact on the rest of us. It as been eye opening and life changing for many of us. Greg will not believe that I was not in my office for three weeks. He won't believe any of this story.

I am waiting for the Drs to complete their rounds this morning. There is a rumor that they may make the decision to remove the EEG dopplers and............the DRAIN!!!!!!  I can't tell you the impact this will have on things. We spend a good deal of time saying, "don't touch that", " hands down", " leave that alone", "you have all kinds of lines in your head", " your nurse is going to be so mad", " you can't do that".  His replies were usually, "you are a pain in the ass, chill, relax", or just a plain old "WHAT".  The poor guy just didn't understand, or couldn't remember what we told him a minute before.  Removing the drain will be a big milestone.

I am curious to see the results of his CT scan from this morning.  As of last night Dr. Du was still concerned with a major vessel that appeared to still be in spasm. As a result of their concern, they put him back on the medications to raise his BP.  The ongoing ups and downs......


This week is going to end really well, I know it..

Winter continues, the drive in was really tough... Take it slow and enjoy what we hope is the final blast of winter!!!

Mike

A month in March 18th

Good morning: hope everyone has recovered from their St. Patrick's day celebrations. I know that  Jehan, Charlotte, and Maggie enjoyed their weekend in Southie!!!

I also know St. Patrick, Bobby, and my mother were showering 9C at the Brigham with the "luck of the Irish".  Greg's day didn't begin well, but as the day went on, the Greg we all love and know began to emerge. As you know, he can always bring laughter to a room, and today was full of those moments.  He did not always know he was doing it and will likely have no recollection of the day......but we will!!

After refusing to recognize or speak to Jill ( Ii think sometimes he is playing us) he began to get more alert, conversant, and really quite the comedian.  We refer to him on days like this as "pleasantly confused".

John and Ann visited today. He knew them as soon as they walked in. When the nurse showed him his growing collection of golf balls, and asked what he would do with them he replied,  "I have no idea".   He even squared off against Donna in a game of War.  Although he didn't  last through one deck of cards, and had to get a little assistance, he did very well.  Donna came home last night and practiced for today's match.

I have gotten a bit of harassment from our family and friends for my self proclaimed aptitude of Neuroscience. This weekend my understanding of this science was clearly more evident.  I gave Jill, Jehan, Donna, and a few nurses, my theory on the annoying presence of an occasional fruit fly on he ICU.  I suggested, as they openly laughed, that the flies were present as a result of laboratory studies being conducted by the Neurology department.  It wasn't until I backed up this theory with medical literature about the use of fruit flies at the Brigham to study Parkinson's Disease and several other neuro disorders. I think they need to apologize and recognize that after a month in he ICU I am learning a bit.

Greg slept pretty well last night. It was perhaps the best nights sleep he has had in a while. We got him into a chair this morning and he is still sleeping.  Breakfast will wake him I m sure.

The drain will likely be raised today but not clamped.  Based on that, the best case scenario would be getting Greg out of the ICU by the end of the week.  As we have learned though, he is always capable of tossing us curve balls.

Have a great day!

Mike

Saint Patrick's Day

Happy Saint Patricks Day,

I know my Mom, born in Ireland, is keeping an eye on the big guy today.

A little late with my update this morning, not because I wasn't here at 6:30, but because we were conversing with the Drs. and getting Greg's day going.  Always a big decision as to what to order for his favorite meal, breakfast.

Greg  had a reasonable night.  The EEG showed no indication of seizure activity over the last 20 hours.  This is good news, but has the team a bit confused as they witnessed the events first hand. Could be reaction to the anti seizure medication or it could also be indicative of the continuation of vasospasm.  Thus,they have taken him for another CTA scan.  They will also keep the EEG Doppler on his head for another day of observation. If anybody has any suggestion on how to keep him from pulling out wires and drain, feel free to chime in.  LOL

Today will definitely be a better day than yesterday.  Almost had to call a code gray ( security ) because he thought he was a star of the WWE.

We are looking forward to watching the bruins -penguins game this afternoon together.  One of his docs promised him a green beer later if he had a good day.  Good thing he has no short term memory or I know he would hold him to it.

Oh and JL remembered the ProV1's today -  looks like we're off to a good start! 

Have a great St. Patty's Day!!!!!!

Mike

March 16"

Good Saturday morning

Was here during rounds this morning. Just as they were finishing rounds and strategizing Greg's day, he had his fourth "event" which I brought to their attention and thy could witness first hand.
It seems as though he is in fact experiencing some seizure activity.  They are going to put EEG leads on for the day to get some info as to what is going on.  It is going to be really fun to keep him from pulling on those, and our nemesis " the drain".   I hope Mary, his nurse today, has her sneakers on.

Despite these events, he is really doing great.  He is getting clearer, knows he is at the Brigham, and this morning rattled off the names of his boys without hesitation!!  All good stuff.

I know everyone recognizes that we could not be prouder of Greg.  No matter the circumstances, what shots he is getting, how much they question him, what they might be annoying with, we always hear a please or a thank you... Boy his MOM taught him well.

He is looking rather cute here this morning, sitting up waiting for breakfast to come, reading a golf  magazine wearing his new Titleist golf hat that his buddy Matt gave him

Here is breakfast, got to go give him a hand.

Have a great day !!

Mike

A little bump in our plan

The end of another week.

They prepared us for the ups and downs and we have certainly been on an upward trend most of this week.  Arriving to his room this morning I was met with a bit of a disappointing change, finding that Greg's drain line had been lowered and opened back up.  Apparently through the night he was unusually less responsive, talkative, or active.  He was brought in for an early morning CT scan which showed improvement, however the Drs were concerned about the possibility of seizure activity.  He said " what's up" to me but has otherwise been non conversant.  Not how I have been greeted most mornings this week!!  Can you say sh#% !!!

Donna and I were planning on going with Jill to Spaulding Rehab for a tour of their facility in anticipation of his move.  We will see what the day brings.

I see almost four dozen Pro V 's sitting on his window sill.  Although John has caught up with he promise I haven't seen him here, as we have been on different schedules.  Kinda weird, but I miss seeing him.

I will try to update later today as Greg is assessed further by the team.

Mike

Thursday March 14th

Thursday 3/14

I walked into Greg's room at 6:00 this morning to find the big guy sitting up in a chair flipping through a magazine.  WOW!!  They expect to have him sitting up a few times per day.

Being here daily, or multiple times per day, we often don't recognize the impressiveness of his progress.  Last night his Godparents, Irene and Leo, stopped by for a visit.  They had not seen him  in a while and I think they were overwhelmed.

During the doctor's rounds this morning they decided to clamp his cranial drain.  This will be observed for 24 hours.  His pressure (ICP) will be observed for the next 24 hours and followed up with a CTA scan. If all goes well the next step will be the removal of the drain.  This will really be a big step.

If all goes well over the next few days we will expect him to be moved to the step down unit which  will move us closer to a rehab facility.  Physically Greg is moving forward at lightning speed and really is a superstar here at the Brigham.  Must be his good genes!!  He continues to struggle with words and thoughts and has a minimal short term memory.  It doesn't really bothers us that he often doesn't know who we are and calls us by different names We can't wait to take this on in rehab.  We know he will continue to power through these challenges.

I have managed to spend some time at my office this week , but despite his progress I'm finding it a bit difficult to stay focused for long.  My office continues to support me and they remain committed to my distraction. 

Mike

We are really feeling as though we are out of he woods medically and we are ready for the next chapter.   

Progress

Wednesday. March 13th

Greg had a bit of a low day yesterday, but got some well needed sleep.  Leaving him last night I felt bad that he didn't have a great day.  However, when Natalie and Sean sent us the video that they shot after we left I felt a sense of excitement.  ACADEMY AWARD MATERIAL!!!

We are pleased that Greg's CT scan went well this morning and we are hopeful that we can get this damn drain out by the end of the week. Believe it or not keeping him from pulling that out is an ongoing battle. His nurse last night, Shirley, never got a break the entire night.

I'm busy here trying to keep him occupied.  Will checking later today.

Mike

Continued improvement

Good morning:
Got to the Brigham at 6:00 and found out from he nurses that Greg had actually gotten some sleep last night.   Great news...as he has not had much over the past three weeks.

Greg has become somewhat of a rock star here.  Not only for what he has endured, but for his rapid progress.  The ritual of neuro evaluations throughout the day are showing some amazingly positive signs that according to the Drs far exceed expectations.  The movement on his suspect right side has made a great turnaround.

With any luck, the drain, will be weened down, ultimately removed by the end of the week. This may be his ticket out of the ICU to a regular bed.  Hard to imagine the journey he has been on.

He is having a difficult time verbalizing, finding the right word, and he has minimal short term memory.  The staff sees this as normal for the trauma he has gone through.  Although it is sometimes difficult for us to witness his sense of confusion, we look at every day positively and with great optimism.  How can we not... We know him!!!

Have a great day!

Mike

Monday- a new week

Hey from the Brigham:

I made my early morning trip to Boston to spend time with the big guy.  I am hoping to spend some time at my office today but we will see how that goes.  Not sure how well I will be able to focus.  Rumor has it my office staff is holding a conclave so if I pull up and see white smoke I know my job is at stake.

Greg had an early morning CTscan the results of which I have not heard.  We really want to hear that the vasospasms have let up to he point where we can be more comfortable with his status and move on to the next phase.

Unfortunately, his ability to sleep has been non existent.  The combination of ongoing spasms, brain swelling, and the level they are keeping his BP surely is impacting his ability to doze off. As I sit here he has finally closed his eyes.  This, and other factors seem to be adding to his confusion this morning.  For the first in a while he didn't know who I was.  Like he loves to do, he old also just be using my chops.

I don't have much else to report this morning and hope his shut eye turns into a productive nap.

Mike

Sunday March 10

Good morning:

It is hard to believe that the 3rd surgery was only four days ago.  We have come so far and have reason for continued optimism.  Greg came off of the ventilator on Thursday and yesterday was throwing balls to me standing at the foot of his bed, like only he would.   I am truly amazed as is the team here.

As with any brain trauma, the road is going to be long, but if his progress is any indication, he will continue to surpass expectations.  As of yesterday the vasospasms continue. He will have another CT scan tomorrow morning.  Depending on the results of the scan they will determine if we can begin weening him off the drain and ultimately remove it toward the end of next week.

Our biggest challenge right now, is keeping him from pulling out his arterial line, drain, and the central line in his chest.  He is proving to be sly and quick and getting a real reputation with the nursing staff.  He charms them to death though!!  Back in the mittens this morning.

Speaking for myself,  fears about what lies ahead for Greg is constant and unavoidable.  Being unfamiliar with this type of brain trauma, can be scary and saddening.  We have to listen to the staff.  They are VERY positive about his progress  and ultimate recovery.  We must listen to them and remind ourselves that they see this every day. We also know that he road may be long but NOBODY has his strength or will.  We have seen evidence of this for the past three weeks.

Our continued thanks to everyone

Mike

Saturday March 9th

Well I finally got to sleep in my own bed. How did it go?  Well let's just say that I was back at the Brigham just after 6:00.  I am finding it tough to leave him.

Upon arrival this morning I found him back in the mittens.  Seems that he got a bit agitated last night and decided he did not need his A line, used to monitor his blood pressure.  Damn thing wasn't working very well anyway.  I think he knew it had to be redone, which it was.  His nurse Denise also reported that sometime after midnight he was moving his right leg, something he has yet to do with much success.  These poor nurses, all I can say is I that its a good thing he is so cute.

Donna has been reading a very interesting book written by a woman who experienced a bleed and stroke.  She talks about how the presence of too many visitors at one time was very confusing and often frustrating.  Her mother, recognizing this, and the fact that the brain needs healing time became the policeman in this effort. This is likely the case with Greg and I don't think you guys will want to mess with Jill.  I think that we will talk today about how to manage this in an effort to keep him comfortable and less confused.  I know that we all have a need to be with him, but his long term healing will have to be the priority. The nurse this morning spoke about really limiting the number of people in his room at one time to avoid overstimulation and confusion.

Greg had another CAT can at 4:30 this morning and the doctors say that, although he shows some improvement from yesterday, he still is in moderate spasm on the left side. The hardest part right now is keeping him from pulling drains, lines etc, without the discomfort of restraints.

We will see see how today goes.
Mike

Morning snowy update

Good morning everyone:

My young man continues to impress the entire medical team here at the Brigham.  He was taken off of the ventilator yesterday afternoon.  Almost immediately, and despite continued vasospasm  he is laying with us, eyes open, recognizing those in the room, and as only he could do, flashing that Gregory smile.

To have gone through three brain surgeries, ten angiograms( a hospital record), at least eighteen CT scans, and ten days on a ventilator and to be able to express any emotion is indeed our miracle.

Yesterday afternoon as Donna and I were going to our favorite, Au Bon Pain, for a coffee, a woman who travels about the hospital playing a harp got on the elevator with us.  Almost immediately she began playing Danny Boy, Bobby's (Greg's grandfather) favorite song.  Donna and he danced to it at our wedding.  We knew at that moment that someone was not only watching over us, but telling us things would be ok!! Right on the elevator.  He actually told the OT this morning that I was his father and D was his mother.......unbelievable.

For the first time in over two weeks we have hope. Not false hope, not hopelessness.  This is a result of not only your prayers but Greg's will and determination.

Greg and Jill will have a very long road ahead.  Your continued positive energy and help will be instrumental in his recovery effort.  An effort we will be so happy to endure.

Donna and I are planning on checking out of our hotel, going home in our own bed, putting and end to our vacation here in Boston.  We will now see what everyone else has been dealing with
traveling Rt 9.

Enjoy the snow, travel safely and have a good weekend.  I know the Landry and Coutu families will .

Best and thank you all.
Love
Mike

Some good news

Hi all:
We are less than 48 hours since the start of Greg's 3rd surgery and quite frankly I have my first unforced smile in two and a half weeks.  Greg was just taken off the ventilator and IMMEDIATELY gave his wife Jill a wink, his mom a smile and me....well, I got that same look I've been getting for thirty years.  Honestly I need nothing more.

It is miraculous !!!!

Although his angiogram today still indicated a moderate level of vasospasm activity, and his very intense monitoring will continue for some time, we are so optimistic.

I just wanted to get a quick note out to all, to share our joy, let everyone feel he smiles on our faces.

With eternal thanks,
Mike

T24 hours later

March 6 2013

It is now 8:00 PM and we are sitting here with Greg almost 24 hours post op.  We know in our souls that we have turned a corner.  Although he is still on the Propofol and the ventilator, we feel that today was a great day.  This young man has endured so much over the last 15 days and today was truly a day of rest for him.   No angiogram, no CT, no wheeling away from his room. His hospital bed has way more miles on it over the past two weeks than does my car.  With some luck we can have him off the ventilator in the next day or so.

Last night was terribly long  and frightening forfor us, as it must have been for so many of his family and friends. Sometimes it is more difficult when you are removed from the situation, so I really appreciate you all hanging in there with us last night. I hope all my kids can get to bed early and catch up on some well earned sleep.  I met the anesthesiologist that has been on two of Greg's surgeries.  She said the entire staff is amazed at our families.... I could not agree more,, it has been what has carried us for over two weeks.

We have a ways to go but today awoke with a new sense of optimism!!!!!

We have been overwhelmed with the outpouring of gifts, emails, prayer and hope from everywhere.  Gift cards to our new fine dining establishment, Au Bon Pain, fruit from Greg's friends in California, a fine italian meal delivered to the hospital from our friends at KVC and the icing on the cake from son in law Jason, a keyboard for my IPad to make by blogging experience easier.  Aside from the keyboard I understand he hand picked a new outfit for Fenway.....so cute!! 

We met with Dr Du tonight and if Greg has a positive scan tomorrow they should in fact be able to take him off the ventilator.  The biggest challenge moving forward will be battling through the remainder of the vasospasms.

Donna and I are heading back to the hotel to catch up a bit on our sleep as well so my blog is brief.  We will catch up more tomorrow with hopefully more positive news and perhaps better rested and with a clearer view of things.

Good night
Mike

PS- John made his usual visit today and he caught up on his golf ball promise. Sorry I missed you while I was napping

Totally Redeems Himself!! ;)

The OWL has come through on his promise to Greg... 10 sleeves for the big guy - great motivation for recovery and rehab!! :)

A New Day!!!!!

March 6 2013

It is 1:45 am here at the Brigham.  Greg is having a post op angiogram.  We just met with Dr. Du, who is the most amazing person, capable and compassionate. I am sooooooo pleased to let everyone know that tonight's surgery was a success with no complications. Your prayers, positive thoughts and support has paid off.  There was in fact another aneurysm and we are now in the clear. Thank you God!!!!!

We are not out of the woods yet and still have a long road ahead until the vasospasms end. We will be in recovery mode for several days and Greg will continue on the ventilator. We anticipate a  long rehab but will attack that the way we have the past two weeks.

We now, for the first time in two weeks, have a glimmer of optimism!!

My energy level is high right now and I will be with Greg for the  balance of the night.
I will tell you that Jill, the love of his life, Donna, Natalie, Sean, Jehan, Jason, Ann, John, and Adam stuck it out here tonight together.  We fought our fears with silent prayer, tears, and laughter... just the way Greg would have.  I have said it before, he is my best friend, my hero and my inspiration.

Good night, or good morning, to everyone following with us on this journey through emails, texts, and our blog.  I know deep in my heart the outcome tonight would have been different without the love and caring of the incredible medical team, his family, and the scores of friends around the country.

With my heartfelt thanks,
Mike

Update - March 5th evening by Mike

An early evening update....because we need your prayers more than ever!!

Greg is headed in to surgery within the hour.  There was considerable change to the unsecured aneurysm, which the entire medical team deamed too risky to ignore.  There was some improvement to the vasospasm fortunately, as doing surgery during spasm is more difficult.  He will be in surgery for most of the evening.

We know this was the only option and success will be his.

Best,
Mike

Mikes update Tuesday March 5, 2013

March 5, 2013

Well, as Jill can attest, I often have some issues technologically.  IPhone, IPad, Facebook, blogging.  I spent time last night putting together my update and while I thought I hit SEND it completely disappeared.  Now that I have confirmed that it was somehow deleted, I will put it together again.

I would like to clarify one thing this morning. I have been busting John ( Jill's Dad) about not coming through on his golf ball promise.  John and I are related on some sort weird, at times frightening way, but most importantly we are friends.  I want to give him kudos for the support he has given to Jill, the boys and us.  He is here daily and most nights back with Ann helping with the boys.  Ok, enough is enough...... Now bring I the ProV1's.

We thought last Thursday that we had turned a corner in terms of the vasospasm activity.  Unfortunately, being so young, Greg has continued to be in a severe vasospasm period. We are at day 14 and the damn things just won't let up.  Yesterday's CT scan and angiogram indicated that we are dealing with some damage from the spasms, however, thus far they are asymptomatic and Greg will be able to overcome this. We just need to get through this stage before any additional collateral.  The Docs are continuing the regime of daily angiograms and CT which enables them to medicate the critically affected areas and evaluate status.

We have also come to understand that there is considerable concern with the "blip". It is officially being referred to as an unsecured aneurysm.  Collectively, we recognize that this will likely require another surgery once we get through the severe vasospasm.  As a group we are doing a reasonably good job of processing the information provided, without speculating the future and getting ahead of the situation.  Like I have said, hour by hour.  We just hope that the big guy catch a break here before long.

Jehan spent most of he day with us and she had a visit from her co-workers at Bain Capital.  They came loaded with two bags of comfort.  Greg's friend Emily also put together a bag for Jill and Greg with cards, food, and even a Red Sox visor which is hanging in his room.  Jess, Chris and Sean, who work here made their regular visits.

We have had Hebrew prayers being sent daily, along with or good friend Fr. Jim checking in.  Another friend, a Presbyterian, is actually wearing rosary beads, given to him by hus devout catholic boss on Greg's behalf.  The young son of another friend, who recently dealt with his own medical issues, offered to lend Greg his special medal, personally blessed by the Pope that helped him so successfully.  All of this brings us such joy, smiles, tears and hope.

Keep the prayers coming...
Mike

Nightly Update - March 3rd 2013

Well the hammer has come down by the boss, and I am in my hotel room ready to catch up on some needed sleep. After 37 years I've learned you don't argue with the boss because he is usually right.

It was another challenging day for Greg and the rest of us. I am beginning to run out of adjectives that describe what this hell has been, or to express our appreciation for the outpouring of support. I should have have paid closer attention in Mrs. Forbes's eight grade writing class.

We were blessed today with visits from Irene, Leo, Tim, Jill and Max Gaudet.  Unfortunately, only Irene was able to pay Greg a short visit which I know was a little tough on her. I promise he felt her standing by his bedside and both Donna and I were uplifted by their visit. We were very surprised to have a visit from the Johnson family. Bill, Laura, and Christie showed up without notice, bearing some wonderful treats to comforts us here at the hospital. It was a great visit and I've always shared and enjoyed Bill's juvenile sense of humor.  My brother John, who is very close to Greg, came by for an early morning visit.   Hopefully the time will come when he can have more visitors.

Update: john showed up again today, void of golf balls. He claims to have ordered them and will catch up in the days ahead.

Greg had the morning CAT scan followed by an angiogram. The results today showed some signs of improvement In some areas and severe vasospasms in other areas.  These are consistent with expectations and indicative that we are still in the peak stage.  Strategically we re trying to manage these spasms and reduce long term damage.   The same testing and treatment is scheduled for tomorrow.

I need to cut this short so the eyes can close.

Mike

Daily update from Mike. March 3,2013

My nightly update .... Too exhausted last night do it ... so it is today's update!

They warned us, prepared us and explained to us that Greg would have some setbacks and yesterday we experienced our first emotionally challenging one. We had been hoping for the trend to continue in the right direction, however, the angiogram indicated not only the presence of more severe vasospasms, but some concerning changes to " the blip" which is potentially indicative of an unsecured aneurysm.  We absorbed the news, processed the information, hugged each other, and then after an unscheduled consult with Dr. Du, recommitted ourselves positively to the situation. This guy has an amazing  support team around him. Despite the fears, recognition of challenges ahead, and just plain missing her "man,"  Jill has been so strong.  I know having Adam, Sara and Natalie here for support today was helpful.  Donna did a great job of keeping us focused and upright. Make no mistake about it, I may be the one holding the steadfast vigil with Greg, but she is the emotional rock for many of us.

At 5:00 am Greg had a CT scan and is scheduled for another angiogram later this morning. We know we will turn this thing around.

Two other updates; John is continuing to fall behind in his ProV1 challenge.  He is six sleeves behind.  We will cut him some slack due to yesterday's events. I am so pleased that Fenway and Jason really seem to be bonding.  When we get through this it may be difficult to separate those two.

Being here on weekends is so different than mid-week.  Much quieter and less hectic. It is a rather nice change.

There are a lot of prayers being said today I know.  They are so appreciated, keep them coming.

We are looking forward to good results today.

Mike

Greg's a total bad-ass ;)

Mike's Nightly Update - March 1st, 2013

Hi all:

It has been one week since Greg's surgery to clip his aneurysm.  What a week!!  Seven days of heartache, tears, ups, downs, smiles, hugs, faith, and hope.  We have been held up on this journey by our friends, families and each other.  The outpouring of love from everyone has changed us forever.  Watching our children pull for one another and understanding just how many friends they all have all across the country is simply remarkable.  Jill has an attitude and outlook that is so positive.  I admire her unconditionally and know that she will be the key to Greg's recovery.

What we have experienced has been absolutely nothing compared to what my "best friend" has endured. His exhibition of strength, courage, and will, is what has helped him survive and what will drive him down a long road toward his ultimate recovery.  We are not only proud, but inspired by him every minute of every day.

Today was supposed to be a quiet day for the big guy.  I supposed compared to prior days it was.   An Ultrsound, EKG  and constant intervention by doctors, nurses, IV nurses, blood draws, constant badgering by his father to "squeeze my hand"or "wiggle your toes"or "open your eyes" was probably more than most of us could tolerate.  I am told he will have no memory of this. At this point we are pleased with the responses on the left side, but his right side is not as consistent  and has a way to go.

His biggest challenge today was fighting a bit of a fever which is common in post brain surgery situations.  The staff wrapped him in an ice blanket for most of last night and today which I know was terribly uncomfortable and caused him at times to shiver.  It was heartbreaking to watch at times, but we know it is very important to the healing of brain injuries.  

He had visits from his sisters Jehan and Natalie and his favorite father in law John. Our nurse and doctor friends at the Brigham, Emilie, Jess, Jason, Sean Levy, and Chris also stopped in to check on our guy.  Greg also would have been so pleased to know that his buddy, Godfather, and friend Leo was able to stop by for a visit.  He and Greg have one special relationship.  Just for proper accounting, John has fallen four sleeves short on his golf ball commitment.  I know he will catch up and follow through on this! 

The really good news of he day came at 7:00 am this morning when Dr. Chiocca called to inform us that the pathology results were back from the tumor biopsy.  The tumor is a type I glioma that is benign and likely present for many years.  It is a rare form of glioma and the treatment or removal of this will be a discussion down the road. This is especially good news in that we can now comfortably focus on the present situation and Greg's recovery from his aneurysm.  

Tomorrow is a big day in terms of his status.  An angiogram is scheduled for tomorrow morning which will give us an indication of where we are in terms of the vasospasms as well another look at the blip that they have been carefully observing.  The hope is that the blip is not an indictation of another unsecured aneurysm.  The team here is so committed to managing his spasms and avoiding the potential for a stroke.  We are so appreciative of their efforts and grateful that they have cutting edge resources and technology.  

His room is becoming quite the gallery of fine art from his nieces and nephews and the Got children.  This certainly brightens our spirit and I know when Greg's sees all their artwork he too will cherish their messages of love and best wishes for Uncle Greggie.

Pray for some positive results tomorrow!!

Pops

Mike's Nightly Update - February 28th, 2013

A long day of waiting around....but some reasons to feel encouraged.

The morning started off a bit disappointing as Greg had some issues through the night with his  ICP ( brain pressure), which warranted an unscheduled CT scan at 4:00 am.  Thank goodness they are so on top of things here and very resource available is utilized without hesitation. Again,  as I have said before, we could not have him at a better place.

The day got better when Jill came in and they reduced his sedative.  On command Greg did some hand squeezing and toe wiggling and also did some tracking with his eyes. I know we all found that to be an exciting milestone. It was great to see Ann here today, as the boys went to daycare. I know that Greg felt her presence.

Thankfully they are planning on giving him the day off tomorrow from scans.  Barring any misbehavior by the big guy he could possibly get the day off. Jehan told Jilly that when Dad comes home the boys won't need a night light.  

John came in for a visit this afternoon, but unfortunately was not able to see Greg, as the timing of his procedure went longer than scheduled. It was still good to have him here for some chatting and to spend time with Jill.  We do need to take up a collection for him because he thought he could park in an a marked area and got hit with a $75 dollar ticket. 

Natalie and Sean fought the traffic up from RI tonight, only to get here and not be able to see Greg until after 9:00. They are real troopers and we all enjoyed grabbing dinner together. Greg, who often thinks his sisters are annoying, would be so proud of how good they are caring for him and being supportive of his family.  They love him so much!!  Nat, Sean, Jehan and Jason are blending work, kids and this nightmare, with amazing strength.  I am in awe of them!! Jason drew the short straw tonight and was assigned with putting up with his new best friend Fenway. I understand that events over the past day or so have brought the two of them closer and closer.  

Tonight's neuro exam was not as successful in terms of moving on command but his eye tracking seemed really good. His ICP and temp are up a bit and the staff is paying close attention.  I have told him that I want to go back to the hotel and he needs to be good tonight, or he will have to answer to me in the morning.  As usual, my fatherly intimidation didn't seem to phase him.  

Tomorrow we will reach some new milestones, I feel it.  I also look forward to him getting some rest.

Good night 
Mike

Someone heard they were giving daddy the day off from an angiogram and was pretty psyched about it! Go daddy Go!