Thursday March 14th

Thursday 3/14

I walked into Greg's room at 6:00 this morning to find the big guy sitting up in a chair flipping through a magazine.  WOW!!  They expect to have him sitting up a few times per day.

Being here daily, or multiple times per day, we often don't recognize the impressiveness of his progress.  Last night his Godparents, Irene and Leo, stopped by for a visit.  They had not seen him  in a while and I think they were overwhelmed.

During the doctor's rounds this morning they decided to clamp his cranial drain.  This will be observed for 24 hours.  His pressure (ICP) will be observed for the next 24 hours and followed up with a CTA scan. If all goes well the next step will be the removal of the drain.  This will really be a big step.

If all goes well over the next few days we will expect him to be moved to the step down unit which  will move us closer to a rehab facility.  Physically Greg is moving forward at lightning speed and really is a superstar here at the Brigham.  Must be his good genes!!  He continues to struggle with words and thoughts and has a minimal short term memory.  It doesn't really bothers us that he often doesn't know who we are and calls us by different names We can't wait to take this on in rehab.  We know he will continue to power through these challenges.

I have managed to spend some time at my office this week , but despite his progress I'm finding it a bit difficult to stay focused for long.  My office continues to support me and they remain committed to my distraction. 

Mike

We are really feeling as though we are out of he woods medically and we are ready for the next chapter.